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Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease.​​
OUR IMPACT SINCE 2019
BUILDING THE FOUNDATION FOR A CURE
58+
Countries Connected
45+
Patients in Registry
First-Ever
Clinical Guidelines Published
3
Centers of Excellence
$260K
Funded Research Projects
Kerstin was diagnosed with Adult Refsum Disease. She found hope through the Global DARE Foundation and the University of Leipzig.
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